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I'm walking on sunshine - nepenthes59 [entries|archive|friends|userinfo]
nepenthes59

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I'm walking on sunshine [Dec. 27th, 2008|10:53 pm]
nepenthes59






The photo is from a birthday card my parents gave me years back - this
quote always rang true in my heart


Thank you to everyone for their good wishes & inquiring about my health





I'm doing pretty well since I came home from the hospital. Sometimes I
get a bit depressed about having bouts of pain everyday - then I look
back to 2006/2007 & realize how things are always changing.

2 years ago
I had fistulas (It can be described as a passageway that progresses from the intestine to the surgery site and then to the skin.) Besides the general
ick factor of fistulas, I pretty much smelled like a garbage truck on a
hot day - I don't know how my family managed to put up with me~!

2 years ago, I was receiving food through a tube in my intestines & I had
a visiting therapist come 2 x a week so I could learn to walk again...


-


A recent statement from my surgeon's office had me walking through
my memory lane of surgery ^.~ This doesn't include anything from
July 2006 - to Oct 8 2006 since I was at a different hospital.




10/09/06 Office Consult
10/13/06 Fuse bile ducts/bowel/roux-en
10/13/06 Ultrasonic Guidance Intraoper
10/24/06 Intestinal Surgery Procedure
10/24/06 Suture, small intestine
10/24/06 Wound Vac Care
10/26/06 Bowel to bowel fusion
10/26/06 Suture, small intestine
10/26/06 Wound Vac Care
10/26/06 Partial removal of colon
10/29/06 Follow up repair of abdominal wall
10/29/06 Wound Vac Care
10/31/06 Follow up repair of abdominal wall
01/08/07 Upper GI Endoscopy w/dilation
06/05/07 Drainage of peritoneal abcess
06/05/07 Wound Vac Care
07/03/07 Office/outpatient visit
07/04/07 Abdomen surgery procedure NEC
07/09/07 Removal of small intestine
07/09/07 Suture, small intestine
07/09/07 Repair bowel skin fistula
07/09/07 Removal of small intestine
07/09/07 Vent/INS Hernia Recurrent
07/09/07 Implantation of Mesh
07/15/07 Suture, small intestine
07/18/07 Wound Vac Care
07/18/07 Change gastronomy tube
07/21/07 wound Vac Care
10/30/07 Office/outpatient visit
11/27/07 Office/outpatient visit
12/13/07 Office/outpatient visit
01/28/08 Repair bowel skin fistula
01/28/08 Removal of small intestine
03/20/08 Incision & Drainage abscess
06/24/08 Office/outpatient visit

LinkReply

Comments:
[User Picture]From: zeli17
2008-12-28 05:44 am (UTC)
I just google imaged fistula to get a better idea and DO NOT EVER GOOGLE IMAGE FISTULA OMG. >_
(Reply) (Thread)
[User Picture]From: nepenthes59
2008-12-28 06:26 am (UTC)
*yikes!~*
(Reply) (Parent) (Thread)
[User Picture]From: rotem
2008-12-28 08:23 am (UTC)
I've been following your LJ for quite a while now and while you do occasionally mention hospital visits and illness and the likes, I never really understood what the whole story is.
I also feel rather improper in asking.
In any case, it doesn't really matter.

What matters is that you're getting better.

Also HOLY SHIT that is a lot of surgery. Do you have any insides left after all those "removal" surgeries? xD
(Reply) (Thread)
[User Picture]From: nepenthes59
2008-12-29 12:10 am (UTC)
Your inquiry isn't the least bit improper. It all began with a duodenal
ulcer that wouldn't heal with medication. I felt really exhausted and on the verge of fainting - so I went to the ER. After the initial diagnosis of pneumonia, blood tests showed I was so anemic I needed to have blood transfusions. The cause of the anemia was a bleeding ulcer & my doctor said I needed to have surgery.

After the initial ulcer surgery, I didn't recover properly - my bile ducts were obstructed & that caused gall bladder failure. At one point, the doctor had told my family I might need a liver transplant - fortunately, that did not happen. I wound up seeking a new surgeon & because bile was emptying into my peritoneal cavity, it was burning up
my flesh.. It took my new surgeon over 5 hours to find my bile duct since so much damage had occurred. I was in essence, being digested from the inside out..

All things considered, I'm one lucky gal!
(Reply) (Parent) (Thread)
[User Picture]From: rotem
2008-12-29 06:53 am (UTC)
It's just a string of complications, isn't it. :(
I'm sorry you have to go through this but it always cheers me up when you write an "I'm better" post. :)
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[User Picture]From: itsumademo
2008-12-28 10:29 am (UTC)
You're so strong. I'm glad you're finally home.
(Reply) (Thread)
From: loreley78
2008-12-28 01:24 pm (UTC)
Dear, I admire your corage, I can only wish you all the best!!! *kiss*
(Reply) (Thread)
[User Picture]From: peace2you
2008-12-28 03:07 pm (UTC)
(((hugs)))
I hope 2009 will bring some relief for you!
(Reply) (Thread)
[User Picture]From: faded_poetry
2008-12-28 08:17 pm (UTC)
i hope 2009 will be of less pain and less hospital visits! hopefully no more surgery! *hugs*
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[User Picture]From: pyjama_llama
2008-12-29 01:22 am (UTC)
That card is so cute and sweet! I hope the sentiment reflects how you're feeling right now.

It's just turned the 29th here... Happy Birthday!! I hope you have a lovely day and I hope things keep getting better for you. *chu*
(Reply) (Thread)
[User Picture]From: miya_fangirl
2009-01-10 08:51 pm (UTC)
*sends you lots of love*

I remember back when you first strated getting sick... I was so worried, and you were so strong. it will only better from now *hugs you and sends you love*

I have a bad case of H-Pylori that I'm fighting in order not to get worse and it doesn't even come close but... really I admire your perseverance *hugs again*
(Reply) (Thread)
[User Picture]From: nepenthes59
2009-01-10 09:04 pm (UTC)
*sends lots of love back to you*

H-Pylori - ahh that is the evil critter that causes ulcers.
Are you on an anti-biotic regimen?

it doesn't even come close **Hugs** I disagree,
pain is pain no matter what the origin!!

I'm sending over Nurse Hyde to give you medicine





(Reply) (Parent) (Thread)
[User Picture]From: miya_fangirl
2009-01-14 02:24 am (UTC)
Hyde!nurse <3

yes it is T_T I've been on two antibotic regimes so far. The first was uneffective and I am finishing off the second. I can't feel an improvement yet because the medecine is/was making me sick, so we'll see over the next few weeks I hope ^^

*hugs*
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